Thursday, February 21, 2008

My Misson

I am starting this blog to journal  my experience, strength and hope with my treatment  of Hepatitis C  that I am getting ready to start. My hopes are, by doing this I can limit my stress,  side effects, and the best part maybe help another human being by sharing my experience. As you will learn I am not much of a writer but the intention is there. The name of my blog is Pejuta Wakan  which is Lakota for Sacred Medicine. I am part Native American and have been practicing the Lakota ways for 15 years  I am a singer at Sundance. My Indian name is Wasteadoa (good song)
So I have hep c My viral load is 40000000 crazy number and I am at stage two  in this disease. There are 4 stages and one(1) is  for lack of better terms the best and four the worse. I just had a round of test cat scan liver biopsy (ouch) and the doctor recommends pegatron  treatment. This consists of a shot a week and daily riboviran pills. I am waiting on the drug company  to get me pre-approved from my insurance, send me the medicine and then start the treatment. I need to say that I am scared to death of this. However I am not ready to die and I want to be around to see my 3 year old daughter grow up and be on her own before I check out of this physical deal. So I am going to do it, its going to work and I refuse to let any side effects control my life. I have a lot of support, my wife and kids, my parents, sister  and all my friends. I have a strong spiritual connection with God,  and the spirits of the 6 directions. This part of the process is very frustrating. I have made my mind up to do this and hurried up and got the test and now I wait on someone and the stupid insurance companies to  get through their red tape. So I have no idea how this blog thing works or if any one will read it but Welcome on the journey  the journey to heal my liver and the journey to the beginning of my new life Hep c free.
I'll write again when I hear from the Drug Company.

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